Diaphragm Paralysis Resources
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Diagnosis Specific Information
Transverse Myelitis Association
"Transverse Myelitis is a rare neurological disorder that is part of a spectrum of neuroimmunologic diseases of the central nervous system. Other disorders in this spectrum include, Acute Disseminated Encephalomyelitis (ADEM), Optic Neuritis, and Neuromyelitis Optica (Devic's disease). The membership of The Transverse Myelitis Association includes persons with all of these disorders, their family members and caregivers and the medical professionals who treat people with these disorders. The Transverse Myelitis Association was established in 1994 as an organization dedicated to advocacy for those who have these rare neuroimmunologic diseases. It was incorporated as a not-for-profit organization in 1996. "
National Multiple Sclerosis Society
"The mission of the National Multiple Sclerosis Society is to end the devastating effects of MS. The Society and its network of chapters nationwide promote research, educate, advocate on critical issues, and organize a wide range of programs-including support for the newly diagnosed and those living with MS over time. "
Post-Polio Health International
"Post-Polio Health International's mission is to enhance the lives and independence of polio survivors and home ventilator users through education, advocacy, research and networking."
World Arnold Chiari Malformation Association
"Staffed by volunteers, the World Arnold Chiari Malformation Association is committed to providing support, current information, and understanding to those affected by the Arnold Chiari malformation and syringomyelia. It is also our goal to raise the awareness of, and educate the medical community as to the complex nature of this disease and how it affects the lives of those who have it. With the help of our members from around the world we hope to be able to provide further research into the areas of symptoms, diagnosis, treatment and outcomes related to ACM and syringomyelia. We recognize the importance of linking patients, specialists, and researchers from around the world to improve our understanding of this disease and are committed to helping establish WACMA chapters across the globe. "
Chiari Connection International / CCI Yahoo! Health Group
"Chiari Connection International (CCI) was created for those who suffer from Arnold Chiari Malformation and related disorders. Related disorders can include: syringomyelia (SM); basilar invagination (BI); cranio-spinal instability (CSI); intracranial and intraspinal cysts; tumors of the cerebellum, brain stem and spinal cord; spina bifida (SB); hydrocephalus; pseudotumor cerebri (PTC); Ehlers Danlos Syndrome (EDS); and various connective tissue disorders. And possibly some not yet even discovered!"
General Information
International Ventilator Users Network
"International Ventilator Users Network's mission is to enhance the lives and independence of home ventilator users and polio survivors through education, advocacy, research and networking."
disABILITY Information & Resources
"The pages provided here are meant to serve as a resource to provide useful information so it might not look that fancy...This site has been online since 1994."
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